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Writin_Reg Member

I will get my next catscan after the New Year - don't have a date yet but my doctor told me Monday after my next session of Chemo and immunology Jan 2,3, and 4- he will set up the date of my scan sometimesthe following week. Hopefully a Happy New Year for that. They call me a Rockstar down there because they say I handle everything great -my blood work is totally normal ranges - I asked the doctor why are they so surprise as it makes me sort of leary I might suddenly come apart at the seams the way they seem so amazed. Instead of making me feel great though I find my self a bit worried. Todays session I did see what can happen in immunotheraphy to a person whose body rejects the medication - it happened in 7 minutes after the session just started. They instantly shut it down - injected a couple of ready syringes into the patient. Needless to say she will not be staying in that trial.

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  • Mendota
    I pulling for you. I know that you can fight this and be with us for a long time. I wish the best Christmas ever for you this year.
    December 18
  • I will get my next catscan after the New Year - don't have a date yet but my doctor told me Monday after my next session of Chemo and immunology Jan 2,3, and 4- he will set up the date of my scan sometimesthe following week. Hopefully a Happy New Year for that.
    They call me a Rockstar down there because they say I handle everything great -my blood work is totally normal ranges - I asked the doctor why are they so surprise as it makes me sort of leary I might suddenly come apart at the seams the way they seem so amazed. Instead of making me feel great though I find my self a bit worried. Todays session I did see what can happen in immunotheraphy to a person whose body rejects the medication - it happened in 7 minutes after the session just started. They instantly shut it down - injected a couple of ready syringes into the patient. Needless to say she will not be staying in that trial.
    December 12
    • Writin_Reg
      Writin_Reg
      I am in a session now too since Monday - tomorrow is my last day of this session, then my Neulestra on Pro for the white cells to stay on top. So far so good. Well I do get my share of hard days - but my body seems to handle it well more than I or anyone else seemed to expect. Keep them good thoughts coming friends. Love you all - Reggie.
    • rosemow
      rosemow
      Hello :) I hope that the catscan in the new year goes as well as can be and the results are encouraging. It is good that your blood levels are in the normal range, and that your body is accepting the medication without issues.
      I send hugs to you <3 and continue to keep you in my prayers.
    • Writin_Reg
      Writin_Reg
      Thank you Rosemow - always much appreciated. I feel it helps so much. You all are my strength - I swear. Big hugs all!
    • Anthonydyer
      Anthonydyer
      I hope the catscan shows some good results. I pray for the best and stay strong!
    • Rflong7
      Rflong7
      Big Hugz and many Good thoughts for you.
    • Writin_Reg
      Writin_Reg
      Thank you Anthony and Rflong. I sure hope so.
  • citysimmer
    Hello, I haven't spoken to you much on here but I just wanted to say I hope you are doing well and will continue to get better <3
    December 2
    • Writin_Reg
      Writin_Reg
      Thank you. I appreciate the good thoughts for sure.
  • NikolaiBanks
    I am not entirely strong in my faith, but I do believe all things are possible in Christ. May you be blessed with the strength to get through your trials of cancer, receive the healing you need to carry on, and lots of positive energy from me and many others who are hoping and praying you make a speedy recovery from your cancer.
    prayer-for-healing.jpg
    September 25
    • Writin_Reg
      Writin_Reg
      Thank you so much Nikolai Banks. Bless you - Hugs Reggie.
    • EA_Cian
      EA_Cian
      While the kind thoughts are appreciated, I would like to remind everyone that while you are free to follow whatever faith you choose, please do try to leave religious references off the forums. I'm going to leave this for now as the sentiment and kind thoughts are again appreciated but be mindful of this moving ahead.
    • Writin_Reg
      Writin_Reg
      EA Cian - this is my wall - not the forums. This is very upsetting to me, I just want you to know this. Writin_Reg.
    • Writin_Reg
      Writin_Reg
      My friends should be able to send me prayers and good thought on my own wall. EA has never had an issue with this before.
    • policeofficerswife
      policeofficerswife
      ❤️ beautiful post. Praying.
    • Writin_Reg
      Writin_Reg
      Thank you.
    • NikolaiBanks
      NikolaiBanks
      @Writin_Reg I hope you are feeling better :) Don't let negative people get you down, keep positive :)
    • Writin_Reg
      Writin_Reg
      Thank you Nikolai. I try to.
    • PRINCESSRey
      PRINCESSRey
      Hello @writin_Reg,
      This is a quote I needed to see greatful you posted it I believe Cian wasn't directed at you unfortunately the minute I write something like this with a Chronic Illness , it brings out the best users and brings some users the worst out with the amout of users its hard for anyone to keep this topic positive I learned the hard way of having a Disability but I admire your strength you help me see I can be strong too. I wish you everyday you have something that brings you joy even in the hardest times may I ask Icould use your Sim Wisdom and understand this whole forums,games etc. would you like to be a Sims Buddies someone who connects on The Sims Forums only I like to direct message and asked you what is your favorite things about the sims for me The Babies are what makes me truly feel joy when playing.
      ~PrincessRey~
      Remember you can.still find a little piece of light even at the most darkest times....
    • Writin_Reg
      Writin_Reg
      Hi PrincessRay - you are welcome to write me here anytime you want - just don't put it on the forums is all I ask otherwise the mods will get perturbed. I am away at the Cancer Center a lot so I can't always get back to you right away - but I will get back to you as soon as I can. Whatever it is your are enduring - I pray for your healing and good days ahead. As for the Sims - I will be happy to talk about the games - I know them all pretty well. LOL. Thank you for dropping by on my wall - I always welcome new friends. Blessings - Reggie.
  • xxnearlyperfectx
    How are you? :) Haven't been on the forums much myself
    November 26
    • Writin_Reg
      Writin_Reg
      Well I have good days and bad ones. Never know what to expect until I wake up everyday. Sometimes you feel horrible - sometimes you are okay. You just have to get through each day and hope tomorrow you feel better on the bad days. You definitely can never make plans - not even a day in advance. It's just a given - you don't plan anything... don't see anyone and just try and keep yourself amused as much as possible. On good days - I clean. My doctor laughs at me - about it.

      On bad days - I play with my Sims, catch up on my reading, and watch movies I haven't seen yet. Lately mostly Christmas movies. Hallmark channel has tons. LOL.
  • Hi all - Went up today and was tested - aced all my bloodwork and all my organ they tell me is in excellent condition. My white cells have continued to go up some more since Fridays tests so they also ran tests on the new immunotheraphy medication. It was a very long day - but very rewarding. I was accepted into the program so they ran the medication for it monitoring me through the whole 90 minutes of the medication. I had no issues at all. Then they followed that with 2 hours of Chemo and monitored that through out. I also had no issues - other than feeling like a sim and wanting to do the potty dance. That's a lot of liquid. LOL.

    Finally got a potty break - lol.

    Hugs all - just wanted to give you all an update.
    October 30
    • rosemow
      rosemow
      Hello :) I am so glad to hear that your bloodtests went well. your organs are working well and the white cell count is continuing to improve! It is so very great that you have been accepted for the new medication and that you tolerated it and your chemo okay. That is such great news! You would be very tired now though. I send hugs to you <3 and continue to keep you in my prayers and thoughts.
    • Writin_Reg
      Writin_Reg
      Awww thank you Rosemow. Yes I am very tired tonight. Sleep is always my enemy when I have unknown things on my mind so last night I did not sleep much but somehow still went through every great - even though I did not expect the Chemo and the new meds until tomorrow - it was a pleasant surprise when all went well. But I will sleep like a rock tonight I think. Also I don't need to be to the Cancer center until 2 pm for tomorrows treatments so I can sleep in some too if need be.

      Anyway thank you so much for all your good thoughts and prayers. I cherish every one for sure. Hugs Reggie.
    • despina53
      despina53
      Awesome news! More positive energy and prayers coming your way. Hope you get lots of restful sleep. Hugs -Dee <3
    • Writin_Reg
      Writin_Reg
      Thank you Dee. Day 2 on the new went great today too. So that was good. Just got in so need to get out of my dressy clothes and into a comfy long Caftan and some soft slippers - and look over when went on here in the forums today. I always check my messages first of course. Sending love and hugs back to you. And yes sleep much better last night. Hugs - Reggie.
    • lisasc360
      lisasc360
      Great news on your bloodwork and getting into the program for your medicine that you need.... :)
    • Goodywood
      Goodywood
      I'm so happy for you and your family Reg! This is truly good news.

      I'm glad you are getting better sleep. You ever try listening to music or watching a movie? I do this when I have too much on my mind and sometimes and it helps me fall asleep. You could also try a relaxing ambience. I never tried it though.

      *hugs*
    • luthienrising
      luthienrising
      Just saw this! SO, SO happy for you!
    • Writin_Reg
      Writin_Reg
      Thank you. As long as it keeps working - we are thrilled.
    • Ceres_Meiriona
      Ceres_Meiriona
      Shazam! I'm overjoyed for you!!! Wonderful to read good news. <3
    • Kynan
      Kynan
      That is wonderful news! I'm very happy for you.
    • SAEldarin
      SAEldarin
      Very glad to hear how things are progressing!
    • Writin_Reg
      Writin_Reg
      Thank you everyone.
    • SilentKitty
      SilentKitty
      Keeping my fingers crossed for you!
  • FreakAboutSims
    They're talking about you by the way.
    November 23
    • Writin_Reg
      Writin_Reg
      Who is? What do you mean? Well what ever it is I hope it is good talk and good thoughts. LOL.
  • ehaught58
    That is so great to hear!!! I am so glad that everything is going well! I will continue to pray for you... :smiley: Ed
    November 6
  • Tremayne4260
    You've always been one of my favorite simmers here for both Sims 3 and 4. I think you bring a great deal of insight into the game and you're quite often the voice of sanity. I'm so sorry to hear of your personal trials and am sending my prayers and good thoughts your way.

    I'm not sure if you were on the Sims 2 BBS back in the day. I sometimes miss that place.
    October 16
    • Mendota
      Mendota
      She was. Writin_Reg is the one who warned us all about Securerom.
    • Writin_Reg
      Writin_Reg
      Yes Tremayne, I've been with the Sims since I tested the Original Sims game (Sims 1) for Will Wright in November of 1999. I have played and enjoyed them all. I keep Sims 2,3, and 4 on my pc and play them often. Mostly Sims 4 right now of course - but I do keep ongoing games ready to rejoin on my pc all the time. Thank you for you loving and kind words - definitely appreciate all the prayers and good thoughts. The Sims keep me sane - and always give me something to stay busy with - it helps the bad days for sure - most of the time. Thank you and hugs - Reggie.
    • Patrice
      Patrice
      Hi Writin_Reg, hope all is going well, my name is Patrice, I love playing sims4,hope we can be friends, have a great day!
    • Writin_Reg
      Writin_Reg
      Thank you so much. Hugs Reggie.
  • Mendota
    Great that you had no issues! Chemo is a lot better than it use to be. Keep on going.
    November 4
  • MidnightAura
    Hi Reg, I hope your appointment goes well this afternoon. Sending my best wishes and lots of positive thoughts to you today.
    October 23
  • Mendota
    Best news ever! Keep it going, I know you can make it.
    October 30
  • Hi Friends - Just wanted to let you all know - the chemo is working. My white cells are back in the safe zone and my Cancer team is also trying to get me into the newest treatment of all with immunotheraphy seeing it works in conjunction with my particular cancers and chemo - now that my white cells are back in the safe zone. Either way I will be back in Chemo therapy next Tuesday - Friday and if they add the new med I will be given that along with my chemo as well. But it uses my own white cells to fight the cancers along with the chemo. So we are progressing in the right direction. Thank you all for all the prayers and good thoughts. It's working!
    October 23
    • lisasc360
      lisasc360
      That is so good to hear that things are working for you. And I hope that they keep working for you and that you will beat this... :D
    • rosemow
      rosemow
      Hello :) I am so glad to hear that the chemo is working and your white cell levels are back in the safe zone. I do hope that you will be able to have the new treatment in combination with your chemo and that it will help you. I keep you in my thoughts and prayers <3
    • SAEldarin
      SAEldarin
      Fantastic news! So very glad to hear!
    • Writin_Reg
      Writin_Reg
      Thank you every one.
    • despina53
      despina53
      That's such great news! I'll still be sending all the positive energy and prayers I can that you continue on the way to beating this. -Dee <3
    • Writin_Reg
      Writin_Reg
      Thank you.
    • Kynan
      Kynan
      I'm so glad you are getting the treatments that you need to fight this Reg. You're in my thoughts and prayers as well.
    • Writin_Reg
      Writin_Reg
      Thank you.
    • xxnearlyperfectx
      xxnearlyperfectx
      Fantastic news!
    • Simburian
      Simburian
      A great relief for you and your family too. Keep fightin' "Hugs"
    • Writin_Reg
      Writin_Reg
      Thank you every one - I definitely plan to fight my best. Just so relieved to see it is working and I am responding well enough to keep this battle going. My family is over the moon when we updated them on the new last night.
    • Tiarella
      Tiarella
      That's great news! Wishing you all the best, and holding you in the Light! --Tia
    • bekkasan
      bekkasan
      That is great news and best of luck with the new treatment! You are still in my prayers.
    • Goodywood
      Goodywood
      Oh, good to hear! I'm just reading this now. I'm so happy. I hope the new treatment also helps. Looks like you have a really good team there.

      *hugs and kisses*
    • meerkattime
      meerkattime
      That's great news!
    • CeleSeraphym
      CeleSeraphym
      Reg, that's wonderful news! Still thinking of you and your family and praying that you stay strong and positive and BEAT this. Virtual hugs and best wishes!
    • Writin_Reg
      Writin_Reg
      Thank you everyone.
    • February11
      February11
      Stay positive. So good to hear you're doing well.
    • JoAnne65
      JoAnne65
      That’s good to hear, stay strong!!
    • Writin_Reg
      Writin_Reg
      Thank you everyone! Hugs all around.
  • Well, we just got back - but won't know the results of the tests until Tuesday afternoon as that is when they scheduled me with my Cancer Team and when they will review all the results and let us know where we go from here.
    Just thought I would let everyone know. Hugs all around Reggie.
    October 19
    • rosemow
      rosemow
      Hello.
      Thankyou for letting us know that you are now back , and will be getting the results on Tuesday. I will be especially thinking of you then. Sending hugs to you <3
    • Writin_Reg
      Writin_Reg
      Thank you.
    • rosemow
      rosemow
      You’re welcome :)
    • Writin_Reg
      Writin_Reg
      Mares I did get the email message - thank you so much.

      Thank you again for all the good thoughts and boy do I hope the powers that be hear all these messages and find me worthy. The wait is... well there is no words - I guess I just have to grin and bare it and hope for the best. Thank you for continuing to have me in your thoughts. Virtual hug warmly received. Hugs Reg.
    • despina53
      despina53
      Thought of you first thing when I got up this morning. Hope the news is good on Tuesday. More positive energy and prayers being sent - Dee
    • Writin_Reg
      Writin_Reg
      Thank you Dee. Hugs.
    • rosemow
      rosemow
      I am especially thinking of you today as you get the results. Sending hugs to you <3
    • Writin_Reg
      Writin_Reg
      Thank you.
  • sims3fanatic
    I am just learning now about your treatments, I am sorry you must go through this. I hope you all the best and that you get better as soon as possible. Stay strong!
    October 26
  • Mendota
    I am so happy for you. I thought of you last night, and it is just now that I had the courage to check and see how things went. I will keep you in my prayers. I admire your spirit in the face of such adversity. I have always admired and respected the fact that you took in foster children. We need more people like you.
    October 23
    • Writin_Reg
      Writin_Reg
      It's given me the most amazing family though - so it has been one of the smartest things I have ever done. All my kids - including my foster kids and their families have been absolute rocks in this battle and making sure I know I am loved and they are there if I need them. So it works both ways for sure. Everyone is excited my reports was good for sure.
  • CeleSeraphym
    Reg, I don't know if you got my last comment or not, but I wanted to again wish you well. I'm thinking of and praying for you today. Hold strong and lean on faith. Take care, all the best, most heartfelt wishes for you and your family. <3
    October 19
    • Writin_Reg
      Writin_Reg
      Thank you - and I did get your last comment. I appreciate every single one, every prayer and kind thought. Hugs and Bless you.
  • xxnearlyperfectx
    Sending prayers and hugs your way- hope your appointment goes well <3
    October 22
  • lisasc360
    I hope all goes well with you today at your appointment and that you get the news that you want to hear... :)
    October 19
  • Mendota
    I will be praying and hoping. Are you on break from chemo at this time? I could recommend some worthwhile sim diversions.
    October 19
    • Writin_Reg
      Writin_Reg
      Yes - they wanted to see how it was going and if it was doing what it should be doing or if they have to change the course of action. My next Chemo set starts the 29th if all is working still. Depends on what these test say I had today.

      Today I am a bit tired - didn't sleep very good last night - worrying about the tests - and then all that travel. My white cell count was getting dangerously low last Chemo session so they had to lower the dose which also worries me as the cancer in the lymph nodes is of the aggressive variety and being in the lymph nodes can move to other lymph nodes. Last set of tests the treatment was working at that level and there had been no spread. So lowering the dose worries me - but there was nothing I could do about that as my white count was barely 2400 - a dangerous level to be.

      I do plan to sim tomorrow though and Sunday too. Maybe get lost in Sims 4 for a bit and then Monday see what comes out from the Sims Camp when the embargo lifts. I am eager for the new Get Famous and want to know more.

      So hopefully keep my mind off the waiting to know side of things - and let Sims take me away. LOL.
    • Writin_Reg
      Writin_Reg
      Also I am on Neulasta On Pro for the low white cells.
  • rosemow
    I am glad that watching the replay of the livecast helped you after your very tiring day of chemo :) I send big hugs to you <3 You have many simmers here who are keeping you in our thoughts <3
    ( I posted this also on the livecast thread, but forgot to tag you :( )
    October 12
    • Writin_Reg
      Writin_Reg
      Thank you Rosemow. I did enjoy the replay for sure. It looks fabulous and even helped me forget about the grueling day today. Been a long week - but I finally got my olestra implant which hopefully will rise up my white cell count to a safer level. Next Friday my team is doing some Catscans of the areas and see how things are looking. Before they were not speaking of radiation but this week doctor also mentions if the aggressive ones in my lymph glands show improvement they may be able to do some radiation on the slower growing non-aggressive 9 mm tumor I have in my right lung and shrink it. That is promising if I can also get my white cell count to a safer level. I sure hope so . It'd be nice to get rid of that big devil. They said it was too dangerous though with such a low white cell count.

      So weird is with Leukemia my white cells were too high and now they are dangerously low. Crazy the way cancer works. But on a great note this time I have a huge team of 16 Oncologists with a real full fledged cancer center. The place is the size of a City itself Big difference this time. So the travel and days and days of daily trips I hope pay off. THings have changed so much in the last 9 years and no nay sayers here.

      I too make sure I am there every schedule no matter what - my doctors say they are amazed I never balk at anything - if only they could look inside they'd see I do - I just keep it to myself. You are too afraid if you say no - well you will lose and I don't want to lose. So if i do, well I am not as brave as they think inside anyway - but I also will not lose and be the cause of it happening so I won't say no - no matter how like jelly I feel inside. This one is a no brainer - and you just have to do it. The only way to go is up and by golly be afraid but try is all I can think.

      So it was especially nice to get out of that mind thought today - every day this week I had chemo and today all this added info - and again Sims managed to somehow draw me away from it all with the new tool. I am not the builder many people are but I can dare to dream and it is a tool even I may be able to do something with. I can dream... So yes - Sims and Maxis again made my day and regardless what some people think of the Sims 4 - well I have very good reason I think of being happy it is what it is and it is still able to take me away from real life that is beyond scary and I sure wish wasn't my realism - but somehow Maxis made me think away from this and made my day better.
    • Writin_Reg
      Writin_Reg
      Need finger crossed October 19th for the new Catscans and whitecell counts. Can sure use some wishful thinking from every one that day. Thanks in advance I feel strong in the power of many good thoughts ( I have to be careful what I call them here apparently but I hope you all get what I mean) L hopefully getting heard and that I am responding as my family and I hope. Can not even think what it means if I'm not. My kids are beside themselves in worry and there is nothing I can say to make it better. I need to make it better somehow - and Lord knows I want that too. I love life no matter what...
    • rosemow
      rosemow
      Thankyou for posting about how you are feeling with how your health is, and details about your heath condition. May you have the strength that you need for each new day <3
    • Writin_Reg
      Writin_Reg
      Yes - I am sorry I could not post it in the post you made but I can't say much on the forum I guess. So the least I could do is put it on my wall - I am fighting as hard as I can. I do hope it is working. It's scary at times - not always bad but it will help make me less fearful if I am really responding - I cannot imagine how I will feel if I am not though. One day at a time - and hope it is working.
    • Simburian
      Simburian
      I hope your treatment goes well and fingers crossed for 19th October. @Writin_Reg
    • Writin_Reg
      Writin_Reg
      Thank you so much. Hugs Reggie.
    • luthienrising
      luthienrising
      *hugs* Thinking of you, Reg!
    • Writin_Reg
      Writin_Reg
      Thank you Luthienrising - always appreciated. Hugs.
    • despina53
      despina53
      I've marked the 19th on my calendar and will be sending you loads of positive energy and prayers. Hugs - Dee
    • Writin_Reg
      Writin_Reg
      Bless you Dee - thank you.
    • Nikkei_Simmer
      Nikkei_Simmer
      Stay strong, Writin_Reg, Pulling for you... prayers, energy and hope...sent.
    • Writin_Reg
      Writin_Reg
      Thank you Nikkei.
    • rosemow
      rosemow
      Hello
      I am especially thinking of you today as you have the cat scans and white cell counts. Sending hugs and hearts to you <3
    • Writin_Reg
      Writin_Reg
      Thank you Rosemow - just leaving for the Cancer Center. Fingers crossed and tummy full of butterflies.
    • SAEldarin
      SAEldarin
      Thinking of you!
    • meerkattime
      meerkattime
      Wishing you all the best today... I hope your appointment goes well <3.
    • MidnightAura
      MidnightAura
      I wish you all the best for your scan today! Thoughts are with you.
    • Writin_Reg
      Writin_Reg
      Thank you every one.
  • Mikezumi
    Although I don't believe we have had any dealings (we may have in years past), I have just read a little of what you are going through and want to add my thoughts and prayers for a happy outcome.
    October 19
    • Writin_Reg
      Writin_Reg
      Thank you so much Mikezumi - appreciate every single one.
  • Thank you so much Mares for your kind and encouraging message. Hugs Reggie. Might I add I am terrified on this one.
    October 19
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Writin_Reg
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